Category: aortic dissection

Cristy Gann
Cristy Gann

Cristy Gann

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Cristy Gann was diagnosed with VEDS after her son Hunter died of an aortic dissection last year, in September of 2021. Hunter was only 14 years old. In this interview, Cristy shares what happened to Hunter, signs of VEDS that were missed in both her and Hunter, and how she is handling her own diagnosis.

Find more information about VEDS, including support groups, an emergency preparedness kit with a wallet card, and medical webinars, at TheVEDSMovement.org. This podcast is not associated with The VEDS Movement or The Marfan Foundation.

If you would like to share your story with VEDS on this podcast, let me know here. I look forward to hearing from you!

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
Jon Holtom
Kacey Keegan

The views, information or opinions in the blog, podcast, and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services.

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Morgan
Morgan and Cameron

Morgan and Cameron

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Morgan’s son, Cameron, was diagnosed in July 2019 with Vascular Ehlers-Danlos Syndrome (VEDS), at 10 years old. This diagnosis came after Morgan continued to press for answers several years after his father, Mike, passed away from a sudden aortic dissection.

Morgan shares how they’ve coped with the diagnosis, as well as the advocacy work she has done to raise awareness and fundraise for VEDS.

You can learn more about VEDS and get involved in The VEDS Movement by reaching out at TheVEDSMovement.org

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Megan
Megan

Megan

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Megan’s brother suddenly passed away at the age of 39 years old in January of 2018. Her and her father found out later that he passed from an aortic dissection, and the coroner recommended that family members make sure it wasn’t due to a genetic condition.

After finding out that she also had an aortic dissection and ileac dissections, she got a blood test and was confirmed to have VEDS (Vascular Ehlers-Danlos Syndrome) in June of 2018. Her children were tested, and her son was also confirmed to have VEDS. Now she knows her brother and mother likely also had the condition.

Megan shares how the diagnosis explained some things about her body, as well as how she copes with the diagnosis for herself and her son.

Thank you, Megan for sharing your story!

Find more information about VEDS, including support groups and medical webinars, at TheVEDSMovement.org. This podcast is not associated with The VEDS Movement or The Marfan Foundation.

If you would like to share your story with VEDS on this podcast, reach out to me here. I look forward to hearing from you!

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Patrick And Jess
Patrick and Jessica (Coggins) Westmoreland

Patrick and Jessica (Coggins) Westmoreland

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Jessica (Coggins) Westmoreland passed suddenly from complications due to VEDS in September 2019 at the age of 27 years old. Patrick Westmoreland, her husband, shares their story and the legacy she left behind in this special episode. Jess was a bright light for those around her, and a force to be reckoned with.

Thank you, Patrick for sharing her story and light with all of us.

If you have VEDS and have not reached out for support, please check out TheVEDSMovement.org for wonderful resources to help you on your journey.

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Bradley
Bradley

Bradley

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Bradley was diagnosed with VEDS (Vascular Ehlers-Danlos Syndrome) a day before his 47th birthday, and a few years after his younger brother passed from an aortic aneurysm. Just a month after his diagnosis with VEDS, he himself suffered an aortic dissection and survived, despite the odds!

Bradley has been through so much since diagnosis, and I am so grateful that he came onto the show to tell his story. Just a year ago, he woke up from the medically induced coma from his life-saving surgery.

This episode was recorded on December 23rd, 2019.

Find more information about VEDS, including support groups and medical webinars, at TheVEDSMovement.org. This podcast is not associated with The VEDS Movement or The Marfan Foundation.

If you would like to share your story with VEDS on this podcast, reach out to me here. I look forward to hearing from you!

Happy holidays!

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Disclaimer

The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services. This content is not produced by nor affiliated with The Marfan Foundation or The VEDS Movement.

About Staying Connected

Staying Connected is a podcast featuring the stories of people affected by Vascular Ehlers-Danlos Syndrome (VEDS). It is produced by Translucent One LLC.