Deb Kruk

Deb Kruk

Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he died. In this episode, she shares that experience, processing her own diagnosis, things she loved about Brian, and more.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at,, and

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

Links to resources, events, and research opportunities: 

VEDS Collaborative Research Study: Email 

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

Join a Walk for Victory:

Help and Resource Center


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Jon Holtom
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman


The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 

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