Jared Griffin

Jared Griffin

Jared Griffin, CEO and Founder of Annabelle’s Challenge, shares his experience with getting his daughter’s diagnosis of Vascular Ehlers-Danlos Syndrome (VEDS), and experience starting Annabelle’s Challenge, a UK Charity for VEDS, more than 10 years ago.

Learn more about VEDS and Annabelle’s Challenge at https://www.annabelleschallenge.org/

Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org

If you would like to share your story with VEDS on this podcast, visit 


Links mentioned in the episode:

Otto Nitschmann, who passed away April 20, 2023, shares his story with VEDS

REDS4VEDS Day, hosted by Annabelle’s Challenge

VEDS Camp, hosted by the Ehlers-Danlos Society in partnership with The VEDS Movement


The Marfan Foundation Conference: 


The Marfan Foundation Walk for Victory:



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Jon Holtom
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The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services.

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