Erik
Erik

Erik

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Erik was diagnosed with VEDS (Vascular Ehlers-Danlos Syndrome) four years ago at the age of 43, after a spontaneous renal artery dissection that occurred while he was at work. He talks about how he got to his diagnosis, ways his life has changed since, and how he stays positive.

Erik’s family runs an annual chili cook-off event to raise awareness for rare conditions and diseases, called “Chillin for a Cure.” You can find more information about their event on their facebook page, here https://www.facebook.com/Chillin-for-a-Cure-379482395942307

If you are looking for more information about VEDS and support, there are great resources at The VEDS Movement, https://TheVEDSMovement.org. This podcast is not produced by or associated with The VEDS Movement.

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The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services. This content is not produced by nor affiliated with The Marfan Foundation or The VEDS Movement.

About Staying Connected

Staying Connected is a podcast featuring the stories of people affected by Vascular Ehlers-Danlos Syndrome (VEDS). It is produced by Translucent One LLC.