Category: POTS

Melinda
Melinda and Nataleigh

Melinda and Nataleigh

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Melinda’s 11 year-old daughter, Nataleigh, was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, after 8 1/2 years of medical issues that finally led to a genetics appointment. At first, she was diagnosed with hypermobile EDS, but Melinda pushed for a genetic test to rule out VEDS and she unexpectedly came back positive.

Melinda shares what kind of complications Nataleigh lives with, including POTS, Chiari malformation, a tethered cord, chronic pain, and gastrointestinal issues, as well as how they’ve coped over time with these issues and the VEDS diagnosis.

To learn more about VEDS, or get connected with others who have it, visit thevedsmovement.org.

This podcast is not affiliated with The VEDS Movement.

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Disclaimer

The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services. This content is not produced by nor affiliated with The Marfan Foundation or The VEDS Movement.

About Staying Connected

Staying Connected is a podcast featuring the stories of people affected by Vascular Ehlers-Danlos Syndrome (VEDS). It is produced by Translucent One LLC.